Showing posts with label emotions. Show all posts
Showing posts with label emotions. Show all posts

06 October, 2025

Understanding ASD frustration - a users guide

 So, while I'm trying to figure everything out - I'm late diagnosed ASD for those that don't know - I thought I would attempt to give you some insights as to what being ASD actually feels like to me, how I'm trying to deal with it, and what it might be like if you found yourself caught in a non-verbal host or if you are dealing with someone inside a non-verbal host.

I'm going to start by talking about frustration.  

Frustration is one of the most common "emotions" I feel - it's a standard electro-biochemical neurological response to not being able to do what you want/think you should be able to do - Most people rapidly normalise these experiences and then immediately tailor their lives to minimise future instances, simple right?

Frustration is annoying and illogical - frustrating events usually contain an emotional component (which always makes matters worse) - but they can also be purely mechanical - in which case the emotional component is usually provided for you by your own mind.

Under normal circumstances I have a base line, a fairly comfortable base line for my things that at least *sound* like emotions - over the last few decades my masking has improved to the point where I don't come across like a complete freak, I don't hide in the toilet so much at social gatherings, and I can manage to do some small talk without alcohol.  Its exhausting, it's mind-numbing and it's pointless.  But it isn't actual FRUSTRATION.

For me, frustration is tangible.  It doesn't exactly physically hurt - but it is extremely close - like it really, really wants to hurt you, and you can feel that intensity.  Now - just to illustrate - odd challenges in neurotypical environments are far from new to me - but when there is absolutely no way past whatever this wall is - no matter what you have tried - you look inside yourself for inspiration and come up blank.  The wall stops feeling like a wall, and starts feeling like a deliberate thing, maybe even a thing with an agenda.

Frustration is red.  It glistens.  It's cold.  It writhes and twists and squeezes. It moves like a collection of worms, not worms that want to help grow plants.  Very upset worms - and they live inside you - but they don't belong there.  They live by the solar plexus and seem to communicate with the main brain via the neurons that make up your mini brain in the stomach (and then the vagas nerve presumably)...and no, I don't think if I cut open my tummy I would find actual worms, but this is how they manifest.  

Once it's physically occurring the feeling of panicked frustration just takes over everything else.

Let's conjure some examples together - 

1) A person is the wall.

2) A computer is the wall.

3) A system is the wall.

4) Its just possible that one day I will encounter an actual wall that is a wall, but usually there are plenty of ways around actual walls, so much so that they don't really count for much in a real day-to-day sense.

All of these issues are likely to require very different approaches, but the trigger to engage is identical - and I really cannot differentiate between the first three from a motivational perspective.

Above all, the most important thing to know about frustration is - once it is there - I don't have a way back - it will live rent free as a 'wrong' in my mind forever.  Why this is important will soon become clear...

So example 1) - what do I do?  It's a person, so I query.  Why are you being a wall?  They will explain their position, and it will be contrary to mine, because I don't want a wall.  We will then be together at an inevitable impasse.  I can mask with the best of them, I can almost pass as normal most of the time (energy permitting) - but upon conflict of interests that just goes out the window - most likely I will try asking and then turn my weapons on and try to wash the wall out of the way, whichever seems to the path of least resistance - but that is a terrible idea - cue countless workplace arguments, disciplinary meetings, angry colleagues that think you are just being really difficult to be a dick.  Highly likely - I have to just live with that.

Example 2 - A computer is the wall - My brain tells me I can always find a solution - always.  When that doesn't work the worms become very cross indeed.  The most likely outcome here?  There is only one, I keep going until I fix it.  If this happens in a work environment it doesn't matter if my boss says - drop that now - we have other priorities - FUUUU!  I'm still going to have to solve it, but now I have to solve it in secret to the suffrage of my other work.  Cue workplace arguments, home arguments.  Sometimes people say "Don't worry about it" - hilarious comedy.

Example 3 - A system is the wall - much easier - I can do systems - I understand processes and procedures, systems analysis is my default mind state.  My likely response?  Rewrite all the documentation, procedures and processes to enable the system to function optimally.  Nobody seems to care one way or another if you do this - which suits me fine - because it makes me feel better and now I'm in control of everything at an operational level.

I hope I have helped you understand a little of the way my mind works in this particular sense, and I hope it's useful with your interactions with muggle folk or peers and equally if you are trying to reach out to and/or understand a struggling mind as a neurotypical person (if such a thing exists).

If you have any questions on the subject I'll happily try and answer...but it's nice and quiet over here at the moment, no-one has been blogging in years...seems a safe place to park while I pencil around my capacity.

26 September, 2008

Day before our Wedding...

At 1.00 today my brother, Tim will marry Gayle and become the next Mr and Mrs Goodall .... having married Fink angel earlier this year, I really can’t wait...there is so much I need to blog about our wedding, the preparation, share our suppliers with the world, the day itself and the honeymoon (including the dolphin post), but for now, I just want to share with the world the emotions that I was going through, the day before I got married...

The build up and day itself were totally electric and I felt like I was walking on air for weeks – totally untouchable and extremely positive about everything. When Scott arrived, we knew there were only a few days left and I had to force myself to get the beauty sleep to prevent bags under the eyes in the pics! I had gone through the anxiety dreams of the car not turning up, or Fink hurting his knee and was well and truly bouncing off the walls with excitement (think of Tigger and you get the picture). Each dream was filled with such happiness and there were absolutely no doubts in my mind that this would be the start of our next chapter and the best days of our life!

I had lots of fun planning our wedding and had spent hours talking to mum about colours, tables, flowers, dresses, and the tiny detail that when pulled together, really do create the most incredible day. We had hired Oxted community hall for our reception and could only get in at 19.00 the night before, so I handed complete control over to Fink, the best man and my family who turned a fairly standard hall into a shrine of Fink and Net memorabilia (and one of the best receptions I’ve ever been too). I had made everyone a little folder, with photos and descriptions of how to decorate the tables and hall and they went above and beyond my expectations in pulling it all together. In the very early days, I said I wanted our wedding to be personal to us, so every item introduced from favours, to the cake, had a hint of our personalities and had gone through a rigorous analysis to make sure it fitted in with the overall theme... (Including hunting high and low for purple toilet roll!)

So, the day before the wedding... fink and I were up early and went into Redhill to purchase one last gift.. We came back, Scott packed the car and then I said a tearful good bye to Fink (the next time we were to meet, would be at the end of the aisle, before taking our vows). Scott drove me to dirking, collected the suits, whilst Fink stayed at home writing his speech ... then he dropped me at my parents, whilst he went off to finish his best man duties (get the car washed etc)... At mums/dads you could feel the anticipation, similar to when you were young child on Christmas eve, waiting for Christmas day when you get to wear your best clothes and yet your parents are all calm (even if they don’t feel it, you would never know!) Dad pottered around making sure the driveway looked good, and mum made the finishing touches to the most incredibly spotless house you have ever seen (photographer arriving the following day). An old school friend stopped by for a chat and then came in with her husband and baby for a coffee.. and since they were also coming to the wedding we chatted about hair, outfits and the fact her son had to wait until the following day before he wore his new coat!

As time ticked on, Charlotte arrived for the pampering... a manicure and pedicure for me, manicure and false nails for mum and not to leave dad out – a man’s manicure for him! By 8.00 all was finished, a quick dinner of jacket potato and salad, then I went to bed at 9.00 – in my old room (which had been decorated) for the all important beauty sleep..... ZZZZZ zzzzzzzzzzzzzzzzzzz

I woke up at about 4am – with dad getting a drink, then slept through till 7 – when Dad got up to take his bathroom slot... When I came down the stairs, I didn’t feel nervous, anxious or even stressed.... just happier than I’ve ever been in my life and unable to stop smiling!

As I’m typing this, I have a lump in my throat as it brings so many memories into my head.. I know I’ll be shedding a tear tomorrow when I see Gayle in all her beauty, and then when they say their vows. Having been together for 8 years, lots of people said being married would not be any different, however I have to disagree. Being married isn’t easy, you have to constantly work at it, but when you make you promises to each other and declare your vows in front of your friends, family, the church and then with the exchange of rings, you know it’s for keeps, and you get a warm, glowing feeling of contentment knowing that no matter what happens, you’ve got each other. .. Forever..