Showing posts with label mental illness. Show all posts
Showing posts with label mental illness. Show all posts

25 April, 2026

Living with Empathy Disorder: The weight of everyone’s bowl

 

So, first a quick update - I’m currently back with another psychiatrist, so slipping slightly backwards, once again above the crisis team…anyway, my new shrink has asked me to do some journaling - he says it’s useful for chewing over difficult concepts - and it has been, at times, so here we go…Today’s topic is just one of the many things I am coming to terms with, but this one offers an excellent explanation and a way forward…so let’s explore it a bit.

For most of my life, I’ve moved through the world seeing humans around me not just as individuals, but as vessels - each one carrying a small, invisible bowl that represented their needs, their sense of belonging, and how included and welcome they felt. Some bowls were always nearly full (no matter what), some bobbed up and down constantly and some were cracked, or just empty…everyone has a clear position in the hierarchy of needs in every social situation (to me).

The emptier bowls are quietly asking for help without ever saying a word, the fuller bowls were often carried by people who were only interested in communicating how full their own bowls were and then you have infinite variations in between - the bowls are always there, and I am always aware of them - it doesn’t matter who you are - you could be Hitler - I will see and measure you and I will probably try and help, or at least make you as comfortable as I can within my power. 

Somewhere along the way, I decided it was my job to try and keep these bowls full - mostly because nobody else appeared to be seeing or reacting to them.

I didn’t react because anyone asked me to, I didn’t try to help because I thought I was going to be good at it - it was because I couldn’t not do it. The moment I sensed someone feeling left out, unheard, or uncomfortable, something in me just fires up like an air raid siren with a strobe.  I’d deliberately shift my attention, constantly adjust my behaviour, and pour whatever emotional energy I had into making sure their bowl didn’t stay empty in the context of the group.

This behaviour is typical in someone suffering from HED - hyper empathy disorder - and it’s common in people with ASD - either that or the direct opposite (empathy deficit disorder).  There is also physical evidence that some people have mirror neurons that fire up only during this sort of exchange - people with it have more, or less neurons turned over specifically to this function - so symptoms can manifest via clinical origin, not just neuro-divergent wiring…

The Lidless Eye

Living, driven by HED, meant I was always scanning the room, reading micro‑expressions, tracking tiny tonal shifts, and spotting the invisible cues most people will barely even register. I wasn’t just aware of how others were feeling — I was left feeling responsible for it -

  • If someone seemed lonely, I’d seek to include them

  • If someone looked anxious, I’d smile, avoid eye contact (more) and soften my voice

  • If someone was upset, I’d drop everything to help them get steady

My own bowl? I didn’t even realise I had one.

The Private Exhaustion

People often praise empathy as a virtue, and it can be. But when empathy is compulsive — when it overrides your own needs, boundaries, and energy — it stops being any form of personal kindness and starts becoming a quiet form of self‑erasure.

You don’t really notice the exhaustion at first - it creeps in slowly, disguised as "being a good friend" or “being supportive”, but over time, constantly tending to everyone else’s emotional world left me drained in ways I can’t even begin to articulate.

  • I was always worried about how others were feeling

  • Always monitoring

  • Always adjusting

  • Always giving

And eventually, I hit a point where I had nothing left to give - and my point to people was largely removed.

Withdrawal is Survival

When you spend years filling other people’s bowls, you eventually realise you’ve been running on fumes. And when you finally notice the emptiness, it’s terrifying - there is no reservoir to draw upon - these people will have to look after themselves - and that feels bad.

My withdrawal from society wasn’t a dramatic collapse. It was more like a slow fade. I stopped reaching out. I stopped joining conversations. I stopped putting myself in situations where I’d feel compelled to manage everyone else’s emotions - a nice cup of tea with the neighbours perhaps.

It wasn’t that I stopped caring.  I haven’t found a way to switch this off.

It was that caring had become a deeply painful process and taking a step back felt like the only way to live again.

What I’m trying to learn

I’m still figuring out what healthy empathy looks like for me — I know it doesn’t match most neurotypical behaviour, for one, I never really appreciated that empathy (as a thing) should have included me…

So  I’m trying to learn that:

  • Not every bowl is mine to fill

  • Other people’s discomfort isn’t a crisis I must solve

  • My own needs matter just as much as anyone else’s

  • Withdrawal/Avoidance wasn’t failure; it was a critical boundary that I required to exist - when no other way could be found

And maybe the biggest lesson:

You can care deeply about others without fully abandoning yourself.

I don’t think I will ever be capable of understanding selfishness, or those people that decided to use me as a robot because I always said yes - and it hurts because I can’t understand it and could never do that.  It also hurts because nobody was ever doing this for me - and when you find yourself, covered in dust by the side of the road - it sure makes you reflect on  your life and where all those slightly fuller bowls went when you are the one cold, lonely and in pain.

How do you tell someone they got it all wrong and cared too much and that's basically what happens? You didn't get credit for any of this - and now you are all used up? That was silly.



30 August, 2025

Alienation - Autism diagnosis after 50


What is it, and where does it come from?  

From my perspective - 

  • A profound sense of innocence and innate level of trust (often misplaced) - hesitant around new people, noisy places - hey, look how shy this guy is!
  • An overwhelming sense of a need to help out (asked for or not) - this can really help or really fail depending on how welcome the offer of help is - it's impossible for me to know before asking
  • Lack of a contextual filter - odd comments, behaviour (Will, Geography field trip)
  • Eidetic memory and great enthusiasm for extremely narrow/fringe areas of interest - the number of people I must have bored to tears waxing lyrical about trilinear mip-map filtered interpolation...
  • Using my intellect to solve perceived issues but sometimes in nasty, unwanted ways
  • Miscommunication - I often approach new people with caution, but this can be read as being deliberately distant and awkward...
It's a double edged sword - from society's perspective - 
  • He doesn't pay attention
  • He's more interested in his own agenda and/or lazy
  • He doesn't appreciate the gravity of the situation
  • He is aloof
  • Why can't he turn some of this energy into something positive?
  • Such a nice guy, but just can't follow instructions or stay on mission
  • Such a nice guy, so how is he always upsetting one person or another in the office?
But what has led me here?  Last thing I knew I was managing to just about masquerade as a functioning member of society (being a recurring theme in this story).  Typically - one or a number of these scenarios can manifest - 
  • My brain is very noisy - sometimes I cannot talk to you - I'm busy just processing - I'm sorry, I'm not sure what your brain thinks is so important - trust me - it isn't - but I bet i'm coming across as being super rude to your special friends and family right now
  • Social cues and relationships are very difficult to correctly read and respond to - responding can take days/weeks of thought/contemplation - writing and rewriting until I think I understand
  • Some normal people are extremely hard work - just being around them - sometimes even knowing *of* someone that is potentially exhausting is quite enough.  Most of the time people aren't looking at the six inches in front of their noses and are bound up in an in inescapable resignation of self to the miserable present - I cannot exist around you - even the tiniest flea should be able to summon more satisfaction from existence just by "being" - if you cannot - and you think you found your nice place in society then you are wrong
  • Strange places can hold solace - even if they do not exist - my happy place is in the world of Harry Potter created by J K Rowling.  It could have been written for me - I also find solace in the quiet corners of the earth - the ones I find by myself...the corner seat on the train, the spot on the platform where the door always opens - an illusion of control over the seemingly untameable
  • Sales people and Autistic people are thrown together by maths problems that involve finance.  These two groups of people are incompatible - sales people are paid to be enthusiastic, noisy, use alcohol and various groups of stimulants to meet objectives - only really care about the bottom line - deliberately shallow - switch off the second they have what they want - 
  • There is always a sword of Damocles - eyes are always on - you can make small gains, but the crushing blow has always been waiting - and it can fall at any time - Doom is literally hanging there
  • It doesn't matter how long, or how successfully you have managed to mask yourself from the muggles - they are always present - and always ready to ridicule you - even when the illusion of holding control seems plausible 
  • Amazingly - There are other people like me.  Unfortunately - these other people are like me - unlikely to socialise, nervous around others - I found a bunch when I was young, but a typical ASD guy is not rushing out there trying to bond with new friends...unless there is some acceptable social crutch in place that helps with crippling social anxiety brought on by ASD (there is, but it brings it's own problems). 
  • At the end of the day - it's just normal life for every single person you know to either lose interest in you or betray you to a greater or lesser degree - every single job will - at best - politely put up with you, as soon as some sort of error crops up then we are sacking you - this is the reality of the situation - better get used to it.  It doesn't stop the hurt and confusion but it does go some way to helping to understand the decisions that found me at their centre.
I'll move on to what it's like to be diagnosed next...although that is still really hard to grasp emotionally.